Canadian Cancer Society – Data Saves Lives

“Data save lives. It’s as simple as that.” ? Thank you to the Canadian Cancer Society for having CanPath at the Cancer Data Community of Practice Workshop in Toronto this March. We were honoured to join this important conversation about improving Canada’s cancer data ecosystem because better data means better outcomes for all Canadians. Dr. Robin Urquhart, Atlantic PATH Scientific Director, says, “Data save lives. It’s as simple as that … How are we going to improve if we don’t know how we’re doing or if we don’t know where we have to improve, right? And data allows us to do that.” Dr. Donna Turner, Manitoba Tomorrow Project Scientific Director, says, “We really can’t manage what we don’t measure … We know that cancer data are actually relatively strong compared to other diseases, but we have so far to go.” A video from the Canadian Cancer Society of seven cancer stakeholders is available on LinkedIn.    

Pan-Canadian Cancer Data Strategy

The Canadian Cancer Society (CCS) and Canadian Partnership Against Cancer (CPAC) have launched the Pan-Canadian Cancer Data Strategy that will guide efforts to enhance the collection, integration and use of cancer data. “CPAC and CCS have worked with various partners, including provincial and territorial cancer agencies and programs, healthcare organizations, First Nations, Inuit and Métis partners, researchers, policymakers and people with lived cancer experience to create a cancer-specific data strategy that includes: a framework to guide the mission, vision, values and success factors for improvements in cancer data three priorities for action and investment including: improving the efficiency, timeliness and quality of data capture and access enhancing linkages to current data filling gaps in current data collection and availability a section on the importance of First Nations, Inuit and Métis data sovereignty, with examples of First Nations, Inuit and Métis-led efforts to improve data and data governance.” CanPath, and its seven regional cohorts including Atlantic PATH, are proud to be represented in the new Pan-Canadian Cancer Data Strategy.  We’re committed to filling gaps in data on risk factors to guide cancer prevention efforts.  CPAC Press Release: https://www.partnershipagainstcancer.ca/about-us/corporate-resources-publications/pan-canadian-cancer-data-strategy/

Changing the narrative of lung cancer to improve prevention for non-smokers

Congratulations to Dr. Robin Urquhart and team on their successful funding from the Canadian Cancer Society to examine the effects of environmental exposures in non-smokers to detect lung cancer earlier. Lung cancer is most often linked to smoking, but can also occur in people who have never smoked because of exposure to arsenic, radon gas and air pollution. Yet, in several provinces in Canada where screening programs are being implemented for people at high-risk of lung cancer, only a person’s age and smoking history are currently considered in the risk assessment. With funding from the Canadian Cancer Society, this research team is working to make sure environmental factors are considered when assessing a person’s risk of lung cancer. The results of this research will provide actionable information around environmental exposures to improve personalized lung cancer risk assessment, inform screening criteria and programs and improve lung cancer early detection efforts across Canada. For additional details: https://cancer.ca/en/research/for-researchers/funding-results/breakthrough-team-grants/changing-the-narrative-of-lung-cancer-to-improve-prevention-for-non-smokers Dr. Urquhart was interviewed by CBC Radio to discuss this work project: https://www.cbc.ca/player/play/2189846083866 CBC Interview in Print: https://www.cbc.ca/news/canada/nova-scotia/dalhousie-environmental-risk-lung-cancer-screening-nova-scotia-1.6805468

Canadian Cancer Society Accelerator Grants

The Canadian Cancer Society’s Accelerator grants seek to accelerate the application of high-quality evidence addressing unmet, cancer-related needs (bit.ly/3B9DTj5). Congratulations to Dr. Robin Urquhart, Scientific Director of Atlantic PATH and Dr. Trevor Dummer, National Scientific Co-Director of CanPath on their successful Accelerator grants! Dr. Urquhart’s work will focus on adapting and implementing cancer patient pathways in Nova Scotia. The overarching aim is to implement and test evidence-based Cancer Patient Pathways as a coordinated approach to referral and early diagnosis is needed t oreduce delays and improve patient outcomes. Dr. Dummer’s work will focus on preventing cancer in the gender minority populations. While existing cancer prevention strategies address the needs of the majority population quite well, alternate strategies that account for the needs of marginalized communities who are often at an increased risk of cancer are lacking. This work will synthesize existing practice and is related to Dr. Dummer’s current CanPath project, “Primary Prevention of Cancer-Causing Substance Use in Gender Minority People of Canada” (https://canpath.ca/project/dummer-chan-2022/).

Congratulations to Dr. Robin Urquhart and the CanPath team across the country!

Funded by the Canadian Cancer Society Data Transformation Grant, this work will connect cancer registry and administrative health data with CanPath data creating a unified resource for cancer research in Canada. https://bit.ly/3OojlZ2 Urquhart R, Awadalla P, Bhatti P, Dummer T, Gravel S, Vena J, Alvi R, Broet P, Kendell C, Kirsh V, Lettre G, Skead K, Sweeney E, Turner D. Harnessing the power of linked data to understand cancer and its outcomes: a national linkage project. March 2022-March 2023, CCS Data Transformation Grant. Canada has a wealth of health care and health research data, but numerous barriers prevent efficient sharing of these datasets between provinces. This, combined with further difficulties with linking datasets together, causes major limitations in using the data productively to improve the health of Canadians. With support from the Canadian Cancer Society, Dr Urquhart will lead a team to connect several cancer registry and administrative health data repositories, creating a unified resource for cancer research in Canada. One of the datasets, CanPath, contains data on 1 in 100 Canadians, including lifestyle, family histories, genetics and environment and this, combined with other datasets, will be analysed to understand the causes of cancer and what happens to people with cancer in the short- and long-term. The researchers will also be able to ask important questions about the impact of the COVID-19 pandemic on people who have been diagnosed with cancer during this time. Linking these huge datasets will provide a very important resource for cancer research in Canada.