Predicting chronic disease enabled by New Brunswick and Nova Scotia data linkage

  FOR IMMEDIATE RELEASE – Wednesday, June 5, 2024 Predicting chronic disease enabled by New Brunswick and Nova Scotia data linkage Predicting chronic disease has gotten faster and simpler with the linkage of data gathered from a longitudinal study involving over 34,000 participants and administrative health data routinely gathered by New Brunswick and Nova Scotia. A collaboration between the Atlantic Partnership for Tomorrow’s Health (Atlantic PATH) and New Brunswick Institute for Research, Data & Training (NB-IRDT), and Health Data Nova Scotia (HDNS) is an important opportunity for advancing health research. “I am absolutely thrilled to see these linkages happen,” said Dr. Robin Urquhart, Atlantic PATH Scientific Director. “Atlantic PATH is an incredibly rich resource to understand the health of Atlantic Canadians and all of the different factors, like our biology, behaviours, and environments, that impact our health. This new linkage activity makes our resource more powerful, giving us access to different sources of data to answer complex health questions affecting all Atlantic Canadians.” Atlantic PATH follows the health of participants from all four Atlantic Canadian provinces to help researchers discover why some people develop certain chronic diseases and cancers and others don’t in order to advance prevention and early diagnosis. Atlantic PATH is part of the Canadian Partnership for Tomorrow’s Health (CanPath), a pan-Canadian, longitudinal cohort studying Canadians’ health, behaviours and environments. “Not only is this historical, record-level data linkage activity, this work is crucial for Atlantic Canada, which has among the country’s highest rates of chronic disease and cancer,” said Dr. Ted McDonald, director of NB-IRDT. “Critically, it will enable researchers to focus on studies related to cancer and chronic disease that cannot be undertaken without linking the separate data sources. The data linkage has other important implications too, such as the potential to inform health policy and improve detection, prevention and treatment.” Based at the University of New Brunswick, NB-IRDT provides researchers with secure access to pseudonymized personal level administrative data and conducts research on policy topics to support evidence informed government decision-making. NB-IRDT is a member of Health Data Research Network Canada, a pan-Canadian network of data centres and research organizations. HDRN Canada facilitates access to multi-regional administrative data to address health challenges that cross boundaries and foster improvements in health and health equity. Within the Department of Community Health and Epidemiology at Dalhousie University, HDNS facilitates research and innovation in Nova Scotia by providing access to linkable administrative health data and analysis for research purposes in a remote, secure, controlled environment. HDNS is also a member of HDRN Canada. “This is an exciting opportunity for researchers across the Maritimes,” said Dr. Sam Stewart, director of HDNS. “Research cohorts like Atlantic PATH take a tremendous amount of work to collect, so it is paramount that we do everything we can to make that data as effective as possible. Linking Atlantic PATH data to the data resources at HDNS and NB-IRDT will enable researchers to discover key, long-term insights into the health of Canadians, and signal an important step forward in how research data can be leveraged and enhanced within the healthcare system.” “This is an exciting development, as this linkage includes data from participants in two provinces, so it is already multi-regional in nature,” said Dr. Kim McGrail, HDRN Canada Scientific Director. “It also builds on linkage of other regional CanPath cohorts across Canada, creating many new research opportunities that can help us to better understand chronic disease and how to prevent them.” New Brunswick and Nova Scotia are the first Atlantic Canadian provinces to link to Atlantic PATH, the result of a long and deliberate collaboration involving HDRN Canada, Atlantic PATH, CanPath, and administrative data holders in the four Atlantic provinces. Since the transfer of Atlantic PATH baseline data holdings to NB-IRDT and HDNS, researchers can now apply to link Atlantic PATH data to provincial administrative data holdings, such as screenings, hospitalizations, medication use, health outcomes and more. View the NB data holdings here View the NS data holdings here. MEDIA CONTACT: Dr. Kate Milberry Strategic Communications Manager HDRN Canada kate.milberry@hdrn.ca 604.306.1512

National Health and Fitness Day

June 1st was National Health and Fitness Day! ? It is important to recognize the importance of maintaining the health of our communities and the vital role of regular physical activity among Canadians. CanPath and our regional cohorts strive to advance research that promotes healthy living and well-being for everyone. Check out these interesting findings based on research conducted with Atlantic PATH cohort data, focusing primarily on the relationship between multimorbidity and physical activity. Together, we can build a healthier, more active, and fit future! ?

Shaping the Future of Health Care with New Technologies, Devices and eHealth Innovations

CanPath National Scientific Director Dr. Philip Awadalla is presenting at an upcoming virtual event hosted by the Parliamentary Health Research Caucus and Research Canada. Join to learn more about current trends in Canadian healthcare, particularly in the tech and eHealth space. ?️ Wednesday, May 8 ? 12pmEST/1pmAST ?https://rc-rc.ca/phrc-virtual-ehealth-event-may-8-2024/ Special Virtual Event hosted by the Parliamentary Health Research Caucus and Research Canada Join the Honourable, Dr. Helena Jaczek, MP Markham-Stoufville and PHRC Chair and the Caucus Leadership , Dr. Stephen Ellis, MP (Cumberland-Colchester), Ms. Carol Hughes, MP (Algoma—Manitoulin—Kapuskasing) and Hon. Mohamed-Iqbal Ravalia, Senator (Newfoundland and Labrador) who will host a virtual presentation and Q & A period with esteemed Researchers in the field of eHealth. Technology and eHealth innovations in Canada are playing a transformative role in shaping the healthcare landscape. The integration of advanced technologies and digital solutions is revolutionizing how healthcare services are delivered, accessed, and experienced. Discover the dynamic shifts underway in Canadian healthcare and join us for an insightful afternoon where leading researchers, industry experts, health innovation stakeholders and policy makers come together to explore the latest advancements.

Conference of Atlantic Medical Students (CoAMS)

Atlantic PATH is pleased to be represented at the Conference of Atlantic Medical Students (CoAMS) on April 27th at Dalhousie University. This conference seeks to facilitate student networking to build a strong community environment among Atlantic medical students that will promote knowledge sharing and future collaboration. To accomplish this, a series of medical talks and workshops are offered to students by a variety of health care professionals and related professions. Megan Smith, B.Eng., is a Dalhousie University medical student and will present a poster highlighting her Research In Medicine (RIM) work, “Examining the Effects of Isolation on SARS-CoV-2 Antigen Levels During the Early Pandemic: A Retrospective Analysis of Self-Reported Survey and Serology Data.”  Atlantic PATH’s Research Director, Dr. Ellen Sweeney is pleased to be a judge at CoAMS for the medical students’ oral presentations. Thank you to the CoAMS organizing committee for the invitation.

CanPath is Hiring: Research Operations Manager

Join the CanPath team as the new Research Operations Manager at the University of Toronto. Deadline: September 22, 2023. “CanPath is Canada’s largest population health cohort and a national platform for population-level health research. CanPath is studying the biology, behaviours and environments of Canadians to learn more about the causes of chronic disease and cancer for the good of our country and people around the world. As the CanPath Research Operations Manager, you will be integral to maximizing research funding, which includes conducting detailed analysis and applying and interpreting relevant policies. You will be responsible for directing the activities of a group of staff and therefore will be working together to drive CanPath’s objectives. Using your analytical, communication and problem-solving skills, you will support and collaborate with a diverse set of stakeholders and partners in applying and interpreting policies and procedures, policy issues, and drafting contracts and agreements.” Details: https://jobs.utoronto.ca/job/Toronto-CanPath-Research-Operations-Manager-ON/573838317/  

CH&E Seminar Series – Dr. Kelvin Fong (Sept 2023)

We are looking forward to attend our colleague, Dr. Kelvin Fong’s presentation in the Dalhousie University Department of Community Health and Epidemiology‘s Seminar Series on September 13th at 12pm AST (11am EST). Dr. Fong’s presentation is entitled, “How does the Environment Contribute to Health in Atlantic Canada?”  Dr. Fong is an assistant professor at Dalhousie University in the Department of Earth and Environmental Sciences and cross-appointed in Community Health and Epidemiology. In 2022, they established the Laboratory for Environmental Assessment and Population Health (LEAPH), which focuses on environmental health disparities. For more information, including how to attend the seminar, please refer to: https://events.dal.ca/event/2364-champe-seminar-series.

Melanoma Risk in Atlantic Canada

New work from Dr. Ivan Litvinov and Dr. François Lagacé  at McGill University includes Atlantic PATH participants and highlights why Atlantic Canadians are at higher risk for developing melanoma (skin cancer). The SunFit project conducted focus groups in 22 communities across Atlantic Canada.  Nova Scotia and Prince Edward Island have the highest rates of melanoma in the country, while rates in New Brunswick and Newfoundland and Labrador are in line with the Canadian average. The team compared UV exposure and relevant behavioural factors and found that higher-income participants had an increased risk, but that participants with a lower income were more likely to work outdoors and experience occupational sun exposure which increases their risk of developing melanoma. Further, females had less sun exposure and higher rates of sunscreen use compared to males. Additional information: Dr. Litvinov was interviewed on CBC’s Maritime Noon. “N.S. and P.E.I. have higher rats of skin cancer than national average. Here’s why.” August 22, 2023. https://www.cbc.ca/news/canada/nova-scotia/maritimes-skin-cancer-national-average-1.6943582?cmp=rss) McGill University News Room. “Why men, wealthy people and maritime residents are more likely to develop skin cancer.” August 22, 2023.  https://www.mcgill.ca/newsroom/channels/news/why-men-wealthy-people-and-maritime-residents-are-more-likely-develop-skin-cancer-349697 Chronicle Herald article. “Dermatologist probes skin cancer rates.” September 7, 2023.  https://saltwire.pressreader.com/article/281552295441450    

New Publication – Skin Cancer & Atlantic Canada

Atlantic PATH participants were invited to participate in the SunFit study led by Dr. Ivan Litvinov at McGill University. A new publication focuses on assessing skin cancer risk factors, sun safety behaviours and melanoma concern in Atlantic Canada. Melanoma skin cancer can largely be prevented through education, sun protection, screening, and public health campaigns. However, incidence rates have been increasing and the highest age-standardized incidence rates in Canada found in Nova Scotia and Prince Edward Island (27.66 and 30.94 cases per 100,000, respectively). In contrast, Newfoundland and Labrador and New Brunswick have rates below or comparable to the Canadian average (16.63 and 19.99 per 100,000, respectively). The SunFit study found that participants in Nova Scotia and Prince Edward Island had higher overall rates of sun exposure, as well as the greatest percentage of the skin type with a predisposition to burn. The findings of the study suggest that increased sun exposure, rather than lack of awareness or use of sun protection, may be driving the higher rates of melanoma in Nova Scotia and Prince Edward Island compared to Newfoundland and Labrador. The Sun Fit project continues to expand this work to other Canadian regions.

Pan-Canadian Cancer Data Strategy

The Canadian Cancer Society (CCS) and Canadian Partnership Against Cancer (CPAC) have launched the Pan-Canadian Cancer Data Strategy that will guide efforts to enhance the collection, integration and use of cancer data. “CPAC and CCS have worked with various partners, including provincial and territorial cancer agencies and programs, healthcare organizations, First Nations, Inuit and Métis partners, researchers, policymakers and people with lived cancer experience to create a cancer-specific data strategy that includes: a framework to guide the mission, vision, values and success factors for improvements in cancer data three priorities for action and investment including: improving the efficiency, timeliness and quality of data capture and access enhancing linkages to current data filling gaps in current data collection and availability a section on the importance of First Nations, Inuit and Métis data sovereignty, with examples of First Nations, Inuit and Métis-led efforts to improve data and data governance.” CanPath, and its seven regional cohorts including Atlantic PATH, are proud to be represented in the new Pan-Canadian Cancer Data Strategy.  We’re committed to filling gaps in data on risk factors to guide cancer prevention efforts.  CPAC Press Release: https://www.partnershipagainstcancer.ca/about-us/corporate-resources-publications/pan-canadian-cancer-data-strategy/

CBC News Article

A Dalhousie University and McMaster University led project is highlighted in a recent CBC article. The New Frontiers in Research Fund supported research is focused on disparities in cancer incidence and outcomes in a Black Nova Scotian community (Shelburne, Nova Scotia). This research is truly interdisciplinary, incorporating natural and social sciences to consider the role of environmental, biological, genetic, socioeconomic, and lifestyle factors with the high cancer incidence and mortality in this community. Atlantic PATH will act as a comparison population using data and biological samples from Nova Scotia participants. Additional details about this project and the new Nova Scotia Environmental Racism Panel in the CBC Article by Josefa Cameron (July 2, 2023): https://bit.ly/44dw9cu